Press Release

Rare Disease Trials, Rarely Ready: Why Most Fail Before They Begin, Upcoming Webinar Hosted by Xtalks

In this free webinar, gain insight into why over 50% of rare disease trials are discontinued or unpublished and how to prevent it. Attendees will see how using normalized clinical data can cut site activation and cohorting time by months. The featured speaker will discuss how a rare-disease-optimized trial model can improve enrollment rates and reduce screen failures. Attendees will also discover how plugging into workflow-native tools can win requests for proposals and save $50K+ per underperforming site avoided.

TORONTO, Sept. 11, 2025 /PRNewswire/ — Clinical trial failures in rare diseases aren’t due to bad drugs; they’re due to bad data, underpowered study designs and archaic recruitment strategies. The result? Years lost. Millions wasted. And patients are left waiting or worse, never receiving potentially lifesaving/changing therapies.

In this webinar, the featured speakers will explore why over half of rare disease randomized control trials fail before results are published and how a next-gen model of data normalization, intelligent cohorting and workflow-native activation can cut trial durations and reduce costs. This session will be beneficial for sponsors and CROs ready to ditch the spray-and-pray trial model and move toward precision-built studies that start faster, run leaner and leave no patient behind.

RegisterĀ for this webinar to learn how to overcome common pitfalls in rare disease trials using a data-driven, precision-focused approach.

Join Ediz Calay, PhD, Senior Manager, Commercial Strategy for Life Science, IMO Health, for the live webinar on Thursday, October 2, 2025, at 12pm EDT (5pm BST).

For more information or to register for this event, visit Rare Disease Trials, Rarely Ready: Why Most Fail Before They Begin.

ABOUT XTALKS
Xtalks, powered by Honeycomb Worldwide Inc., is a leading provider of educational webinars and digital content to the global life science, food, healthcare and medical device communities. Every year, thousands of industry practitioners (from pharmaceutical, biotechnology, food, healthcare and medical device companies, private & academic research institutions, healthcare centers, etc.) turn to Xtalks for access to quality content. Xtalks helps professionals stay current with industry developments, regulations and jobs. Xtalks webinars also provide perspectives on key issues from top industry thought leaders and service providers.

To learn more about Xtalks, visit www.xtalks.com
For information about hosting a webinar, visit www.xtalks.com/why-host-a-webinar/

Contact:
Vera Kovacevic
Tel: +1 (416) 977-6555 x371
Email: [email protected]

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